Monday, May 28, 2018

Childhood Cancer STAR Act Passed!!

Last week, something HUGE happened for Tillery. It wasn't our awesome fundraiser or her successful surgery, I'm talking about something much, much bigger.

THE CHILDHOOD CANCER S.T.A.R. ACT PASSED THE HOUSE OF REPRESENTATIVES!!!

You may remember that our family went to Washington D.C. a little over a month ago to meet with Congress members to talk about the importance of passing the Childhood Cancer S.T.A.R. Act. It had already passed the Senate unanimously and had about 80% of the House of Representatives signed on as co-sponsors of the bill. Voting was really just a formality but it needed to happen! So our job was to talk it up and ask everyone to push the appropriate members to bring the bill to a vote.

Last Tuesday, the House of Representatives finally brought the S.T.A.R. Act to a vote and it again passed unanimously!! Now, we just need President Trump to actually sign it this week and then we move on to the next stage...funding it!

This was a HUGE thing for our child and for so many others. This bill looks after these kids in the present and in the future and with Tillery still having her mass, there is always the chance that her tumor could grow again. If it grows, the STAR Act is going to help get better treatment options out there. And even if it doesn't grow, the STAR Act is going to be looking at the long term health of kids who have been on chemo and will help her as she ages.

We fundraise for childhood cancer research and we will continue our efforts but the S.T.A.R. Act may be able to open up funds that are much larger than anything we can imagine.

As I said above, we do have a few more hurdles:
1. President Trump has 10 days to sign the S.T.A.R. Act to keep things rolling.
2. We need Congress to again get together and agree to fund the S.T.A.R. Act, which is a pretty small cost compared to most other things that are brought before them for funding.

As always, we have a way that YOU can help! Use this link to send a message to President Trump to ask him to sign the S.T.A.R. Act. https://www.whitehouse.gov/contact/

Once President Trump signs and we move onto the next hurdle of how to fund the S.T.A.R. Act, we will let you know ways you can support that, as well.

Remember, this isn't a Republican or Democrat issue...this is a children's health and safety issue!


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